The section-ELSA stands for ethical, legal and social aspects that touch on NFDI’s fields of activity. Many of these issues affect several, if not all, NFDI consortia. Data protection and intellectual property rights issues are intruding into the research data cycle. Ethical questions of data use arise with regard to data provenance from indigenous and other societies. And what should social participation in research data look like? ELSA networks the consortia and expert communities to share experiences and develop joint approaches to solutions. ELSA discusses and comments on current legislative proposals that are becoming important for the research data infrastructure. The section sees itself as a forum for consortia and NFDI members from all disciplines.

The section does not have fixed groups, but works on a topic-oriented basis to meet current needs. Current examples are commenting on EU and national legislative projects, anonymisation issues and data trust. If working groups are formed in the future, they will be published here.

Deputy Speaker: Prof. Dr. Ulrich Sax 

(Georg-August-Universität Göttingen)

Comments

• Stellungnahme zum Daten-Governance-Gesetz (German, published in May 2023)
• Stellungnahme zur öffentlichen Konsultation zum Forschungsdatengesetz (German, published in May 2023)
• Comments on the draft implementing regulation concerning the availability of public data sets (published in June 2022)
• Comments to EU Data Act (published in May 2022)

Suggestions

• Handreichung: Datenschutzrechtliche Aspekte zum Video-Upload auf Video-Plattformen (Zenodo, German) 
• Entscheidungsbaum: Video-Uploads auf Video-Plattformen (Zenodo, German) 
• Entscheidungsbaum: Datenschutzkonformes internes Teilen von Forschungsdatensätzen (Zenodo, German)

   

Events

• ELSA-Workshop October 2022
• Data privacy workshop November 2022
• TF Ethics Workshop February 2024
• First NFDI4Health Friday Lecture on the Health Data Use Act (GDNG)

NFDI4Health Friday Lecture

NFDI4Health Friday Lecture on 05.04.2024

The section ELSA recommends the Friday Lecture by NFDI4Health, taking place online on April 5, 2024. Prof. Dr. Dennis-Kenji Kipker will provide insights into the new Health Data Use Act (GDNG), which will come into effect in April 2024. The lecture will cover the novelties, peculiarities, and political controversies surrounding the GDNG, offering perspectives on its implications for research, particularly in the field of Public Health. All those interested are warmly invited to participate in this public event.

More information about the event and registration can be found here.